Mother of two girls on a mission to raise awareness about the rare disease Erythromelalgia, that my eldest daughter Lynn was diagnosed with at the young age of 8 years! I share my journey of motherhood, inclusion advocacy and social awareness through my posts and blogs, hoping to inspire and support others on a similar journey.

Erythromelalgia aka Man on Fire Disease is a rare neuro-vascular condition that affects 1 in 100,000 persons in the US alone. Erythromelalgia is characterized by redness, increased warmth and swelling of the skin which could affect the extremities and face, causing a severe burning sensation and throbbing pain in recurrent episodes called flares.